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White Paper „Biobanking in der Medizininformatik-Initiative"

Die Erschließung von Biomaterial und assoziierten Daten für die Forschung

Mathias Wieland, Peter Schirmacher, Michael Hummel, H.-Erich Wichmann

 

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A template for broad consent in biobank research. Results and explanation of an evidence and consensus-based development Process

Strech et al.

 

in: European Journal of Medical Genetics 59 (2016) 295-309

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Reconsidering Anonymization-Related Concepts and the Term "Identification" Against the Backdrop of the European Legal Framework

Murat Sariyar und Irene Schlünder

 

in: Biopreservation and Biobanking. April 2016. doi:10.1089/bio.2015.0100.

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National Cancer Institute: Best Practices for Biospecimen Resources

März 2016

 

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Bundesgesundheitsblatt - Schwerpunktheft zum Thema Biobanken

Biobanken – eine entscheidende Ressource für erfolgreiche biomedizinische Forschung

 

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European medical research escapes stifling privacy laws

 

Nature | doi:10.1038/nature.2015.19054

 

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Template for informed consent for biobanks

Permanent Working Party of the German Medical Ethics Committees provides document in English

 

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only in German

Empfehlung für die Bewertung forschungsbezogener Humanbiobanken durch Ethik-Kommissionen vom Arbeitskreis Medizinischer Ethik-Kommissionen

 

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Data overprotection  Draft European rules governing privacy threaten to hamper medical research.

 

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Biomaterialbanken als Grundlage für die Entwicklung genetisch basierter Präventionskonzepte

by M. Hummel and C. Rufenach

 

Abstract

Collections of human biological samples and their link to additional information is not a new concept. However, the demands on the quantity, quality, and the information content of biological samples have increased considerably in recent years. The legal and ethical frameworks have changed accordingly, as well as the degree of (IT) networking and communication between biomaterial banks. Due to this development, biobanks contribute significantly to the generation of genetically-based prevention concepts and to new therapeutic approaches.

 

Article only in German SpringerLink

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Deutsch English

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Global Biobank Week

13.-15.09.2017, Stockholm (SE)


14. Jahrestagung DGKL

11.-14.10.2017, Oldenburg